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Biomedical

Caught you: threats to confidentiality due to the public release of large-scale genetic data sets

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Matthias Wjst

Matthias Wjst


  Peer Reviewed

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© attribution CC-BY

  • 0

rating
406 Views

Added on

2024-10-26

Doi: http://dx.doi.org/10.1186/1472-6939-11-21

Related Subjects
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Epidemiology
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Abstract

The article "Caught you: threats to confidentiality due to the public release of large-scale genetic data sets" by Matthias Wjst examines the ethical implications of sharing large-scale genetic data for research purposes. It highlights the risks associated with the assumption that anonymizing genetic data fully protects individual privacy. The study identifies two primary re-identification methods:

Key Questions about Confidentiality in Genetic Data Sharing

1. What are the risks associated with sharing large-scale genetic data?

The article identifies two primary re-identification methods:

  • "Netflix" Re-identification: Combining a small genetic dataset with a personal identifier from another source can re-identify individuals.
  • "Profiling" Re-identification: Extracting information from the anonymized genetic data can infer identities or sensitive health information.

2. How can anonymized genetic data be re-identified?

Anonymized genetic data can be re-identified through:

  • "Netflix" Re-identification: Merging with a small genetic dataset that includes a personal identifier.
  • "Profiling" Re-identification: Analyzing the data to predict physical characteristics or disease risks, which can lead to re-identification.

3. What are the ethical implications of re-identifying individuals from genetic data?

Re-identification can lead to the unintended disclosure of personal genetic risks, potentially causing harm to study participants. This underscores the need for robust privacy protections when sharing genetic data.

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ARTICLE USAGE


Article usage: Oct-2024 to May-2025
Show by month Manuscript Video Summary
2025 May 65 65
2025 April 57 57
2025 March 65 65
2025 February 44 44
2025 January 50 50
2024 December 46 46
2024 November 55 55
2024 October 24 24
Total 406 406
Show by month Manuscript Video Summary
2025 May 65 65
2025 April 57 57
2025 March 65 65
2025 February 44 44
2025 January 50 50
2024 December 46 46
2024 November 55 55
2024 October 24 24
Total 406 406
Related Subjects
Anatomy
Biochemistry
Epidemiology
Genetics
Neuroscience
Psychology
Oncology
Medicine
Musculoskeletal science
Pediatrics
Pathology
Pharmacology
Physiology
Psychiatry
Primary care
Women and reproductive health
copyright icon

© attribution CC-BY

  • 0

rating
406 Views

Added on

2024-10-26

Doi: http://dx.doi.org/10.1186/1472-6939-11-21

Related Subjects
Anatomy
Biochemistry
Epidemiology
Genetics
Neuroscience
Psychology
Oncology
Medicine
Musculoskeletal science
Pediatrics
Pathology
Pharmacology
Physiology
Psychiatry
Primary care
Women and reproductive health

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