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Biomedical

Group plus “mini” individual pre-test genetic counselling sessions for hereditary cancer shorten provider time and improve patient satisfaction

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Jaclyn Hynes,

Jaclyn Hynes

NULL


Andrée MacMillan,

Andrée MacMillan

NULL


Sara Fernandez,

Sara Fernandez

NULL


Karen Jacob,

Karen Jacob

NULL


Shannon Carter,

Shannon Carter

NULL


Sarah Predham,

Sarah Predham

NULL


Holly Etchegary,

Holly Etchegary

NULL


Lesa Dawson

Lesa Dawson

NULL


  Peer Reviewed

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© attribution CC-BY

  • 0

rating
472 Views

Added on

2024-10-03

Doi: http://dx.doi.org/10.1186/s13053-020-0136-2

Related Subjects
Anatomy
Biochemistry
Epidemiology
Genetics
Neuroscience
Psychology
Oncology
Medicine
Musculoskeletal science
Pediatrics
Pathology
Pharmacology
Physiology
Psychiatry
Primary care
Women and reproductive health

Abstract

Background Genetic counselling (GC) is an integral component in the care of individuals at risk for hereditary cancer predisposition syndromes (CPS). In many jurisdictions, access to timely counselling and testing is limited by financial constraints, by the shortage of genetics professionals and by labor-intensive traditional models of individual pre and post-test counselling. There is a need for further research regarding alternate methods of GC service delivery and implementation. This quality improvement project was initiated to determine if pretest group GC followed immediately by a ‘mini’ individual session, would be acceptable to patients at risk for hereditary breast and colon cancer. Methods Patients on waitlists for GC at the Provincial Medical Genetics Program in St. John’s, NL, Canada (n = 112), were contacted by telephone and offered the option of a group counselling session (GGC), followed by a “mini” individual session, versus (TGC) traditional private appointments. GGC sessions consisted of a cancer genetics information session given to groups of 6–20 followed by brief 20 min “mini” individual sessions with the patient and genetic specialist. TGC individual appointments provided the same cancer genetics information and counselling to one patient at a time in the classic model. All but 2 participants selected group+mini session. A de-identified confidential 12-item, Likert scale survey was distributed at the conclusion of mini-sessions to measure perceptions of GGC and satisfaction with this counselling model. Results Sixty participants completed questionnaires. The majority of participants strongly agreed that they were comfortable with the group session (58/60); the explanation of cancer genetics was clear (54/59); they understood their cancer risks (50/60); and they would recommend such a session to others (56/59). 38/53 respondents disagreed or strongly disagreed that they would prefer to wait for a traditional private appointment. All 5 participating genetic counselors reported a preference for this model. At the end of the pilot project, the waitlist for counselling/testing was reduced by 12 months. Conclusions Group pre-test genetic counselling combined with immediate “mini” individual session is strongly supported by patients and reduces wait times. Additional formal investigation of this approach in larger numbers of patients is warranted.

Key Questions:

1. How did patients perceive the group counseling format?

Patients generally felt comfortable with the group sessions and found the cancer genetics information clear and helpful.

2. Was there any preference for traditional private sessions over the group model?

The majority of patients preferred the group model over traditional private sessions, especially since it helped reduce wait times.

3. How did patients feel about the wait time between the group session and individual mini session?

Most patients found the wait time between the group and individual sessions acceptable as long as it reduced waitlists.

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ARTICLE USAGE


Article usage: Oct-2024 to May-2025
Show by month Manuscript Video Summary
2025 May 106 106
2025 April 71 71
2025 March 63 63
2025 February 46 46
2025 January 59 59
2024 December 39 39
2024 November 46 46
2024 October 42 42
Total 472 472
Show by month Manuscript Video Summary
2025 May 106 106
2025 April 71 71
2025 March 63 63
2025 February 46 46
2025 January 59 59
2024 December 39 39
2024 November 46 46
2024 October 42 42
Total 472 472
Related Subjects
Anatomy
Biochemistry
Epidemiology
Genetics
Neuroscience
Psychology
Oncology
Medicine
Musculoskeletal science
Pediatrics
Pathology
Pharmacology
Physiology
Psychiatry
Primary care
Women and reproductive health
copyright icon

© attribution CC-BY

  • 0

rating
472 Views

Added on

2024-10-03

Doi: http://dx.doi.org/10.1186/s13053-020-0136-2

Related Subjects
Anatomy
Biochemistry
Epidemiology
Genetics
Neuroscience
Psychology
Oncology
Medicine
Musculoskeletal science
Pediatrics
Pathology
Pharmacology
Physiology
Psychiatry
Primary care
Women and reproductive health

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